The Worst Word

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I have this fear. It follows me around everywhere I go. It’s never far. It lingers in the back of my mind whispering to my subconscious that no one I love is safe. What’s my biggest fear you may ask? The simple answer to that is Cancer.

My first real experience with this unforgiving disease was in January of 2013. That was the year my life changed forever.

  “It’s stage four Cancer”  was what my husband told me. We weren’t exactly sure what that meant only that it was bad. At that moment it seemed like my world was spiraling out of control. I knew then that nothing would ever be the same.  

My husband and I just stood there stunned.  As soon as it hit me I began to cry. My husband looked at me and said “what?”. Now at this point I’m pretty sure my husband was in shock (we both were), and it hadn’t exactly sunk in yet. ” He’s dying” was all I said.

The person in question was our friend Jason. He was my husband’s boss and both of our good friend. We had met him, and several other close friends in October 2010 at a poker game we attended.

Jason was a husband to a very interesting and intriguing women who in time I grew to love whole heartedly. He was also a father to two of the most awesome kids I know. He was quiet and smart and one of the best Texas hold ’em players I had ever met.

He was also blessed with a fairly wry sense of humor. For example one of the nights he was at our weekly poker tournament and was sitting at my table. Now usually there is anywhere from 15 to 27 players at these games. We had been playing with this group every weekend for a few months already. Poker was the first thing I found that I was a natural at. I loved it!

On that night when it was my turn to shuffle then deal, and since my shuffling was so terribly slow, I had resorted to politely asking whoever was lucky enough to be sitting near, if they would shuffle for me.

Lets be honest here, I was still new to the whole poker thing, and as I like to say I was the best worst dealer around.

I thought I was doing everyone a favor by not taking up anymore time as it was.

Out of the corner of my eye I noticed movement to my left. It was Jason. He had gotten up, walked to the kitchen picked something up, and proceeded to walk with it over to me and set it down right in front of me. To my horror it was a shuffling machine!

All you had to do was cut the deck in half. Place each half on either side of the machine, press the botton, and viola your deck is shuffled!

I will never live it down.

This was probably the most embarrassing thing that had happened to me since I started playing Texas hold ’em.

So of course I did the only thing I could think of. I used it the rest of the night. If you can’t beat ’em join ’em right?

The very next week I was shuffling on my own.

I’m not sure he ever knew it but I was in in constant competition with Jason. My husband and I played every Friday night for the next three years with that group. They became like family, and still are.

Jason in my eyes was the best player there, so of course in my mind I needed to beat him as much as I possibly could. That didn’t work out so well for me on many occasions, but that didn’t mean I would ever stop trying.

In January of 2013 two years and three months after I met him, Jason my friend was diagnosed with Stage four terminal cancer. With in six weeks he was gone. He was 38 years old.

The one thing I learned from his passing was that this life is a fleeting gift. You have to make the most of it, and never look back. I hold my family even closer now then ever.

I quit smoking and took up writing instead. The first thing I ever wrote was a poem which I read at the spreading of his ashes. I didn’t keep a copy, and I don’t remember the words. It was just for him.

The truth is I can’t stop cancer from happening but at least I can try and leave my mark on this world through my words as well as my actions.

Last week one of my family members was diagnosed with cancer. Immediately my anxiety kicked into overdrive and I have been having trouble sleeping again. I imagine until we find out more I will continue to have this problem.

The fear is real. No matter what happens though I will push on, and help him fight in anyway I can. Sometimes all we can do is be there and that’s what I intend to do.

Oh and fuck you Cancer!

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For my friend Jason, gone but never forgotten

 

 

 

 

 

 

An unforgiving Illness

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Sometimes I feel like a terrible daughter.  My mother who raised me the best she could for as long as she could suffered from mental illness. She is a Bi-polar Manic depressive to be exact.

She never wanted to take her medicine. She said she didn’t like the way it made her feel. I can’t imagine how it must feel to be in her shoes. Dealing with something so severe on a daily basis.

At her best my mother was soft spoken and loving. She loved to sing to us her children and she had a beautiful voice to match.

At her worst she thought the devil was trying to kill us and constantly moved us around all through out my childhood. Sometimes she would stay up all night talking to herself, and sleep all day when she had one of her mood swings.

My father  was never around when I was growing up. He is a Vietnam war veteran. I don’t doubt that he and my mother loved each other very much at one time. I have heard that as much hate as you show someone at the end of a relationship there had to be an equal amount of love at some point. They haven’t been together in over twenty years and to this day they are still legally married. So there is that.

I think war is a terrible thing and I wonder how different my life would have been had my father stayed in college instead of going off to fight. Would he still have abandoned us? I assume when he came back he must have been a changed man.

I have to think that it wasn’t just a character flaw and that the drug and alcohol abuse is evidence of that.

I don’t remember him ever being a father figure but my older siblings do. They say he was a really good dad at one time. I wish I had some memories of it. Once my father and mothers relationship ended he stopped coming around completely.

As I grew up my mother who lost her own mother at 12 years of age, was the one who raised us. Even as chaotic as my childhood was, I never doubted her love for us. At around 16 years of age and after moving in and out of my moms home several times it all became to much for me and I left.

11 years later the responsibility for my mother fell to me. I was the only child of six in the state of California who could take care of her. At that point I had children and my mother was rapidly becoming worse over time.

She still refused to take her medicine and her paranoia was ever present. Part of my mother’s illness is having paranoid delusions. This caused her  to throw things away all the time. In fact growing up I literally had no toys or pictures. Everything normal for children or famiy including school was deemed evil. I literally don’t have one picture of my mother and I together.

This made it impossible for me to live with her or subject my children to that. So my only other option was to find her a small studio near my house that she could afford.

It lasted one year before she was asked to leave because of her behavior. This went on for several years. In California the laws for the families of mentally ill are completely flawed.

The doctors would not commit her without her agreement, in a mental health facility because she wasn’t a threat to anyone. They would not tell me anything about her illness. They do however require her to have a payee for her social security disability check she received every month.

Of course I was good enough to be her payee and handle her money for her but I wasn’t allowed to be told what medications she was taking? The system set up for the mentally ill is fundamentally fucked in California. There is no safety net set up for them and my mother fell through the cracks.

After three and half years and moving her three separate times my mother was on the verge of a complete mental break down. I didn’t know how to help her anymore. Her health was rapidly deteriorating due to the high anxiety from her dilusions. Sometimes she would see things. Scary things. She would never tell me exactly what she saw but the fear she would show told me it was bad.

Finally my sister offered to take her out to Utah where she lived. The week before my mother left I stopped by to check on her. She was in a terrible state and whatever she was seeing scared her half to death. For the first time ever she begged me to take her to the mental health facility that for years she had refused.

A week later my younger brother arrived to get her. Of she course she was still in that place and was due to be released the next morning.

When I picked her up she was a mess but glad to be going to live with my sister and her boyfriend. All she ever wanted was to live with me and my family. As sad as it is, I couldn’t give in. I refused to let my children be subjected to what I was growing up. I was relieved and happy for her that she was finally getting what she wanted.

Six months later my sister called me and said my mom had left and she didn’t want her back. She was way to much to handle. She had stopped taking her medicine and started throwing everything out again. It was understandable. There was no way I could live with her myself.

Luckily my oldest brother stepped in and got her in to a facility in Utah. Surprisingly Utah does have a safety net for those with mental illness. She lives in a place that employs a full time staff. Her social security check covers most of the costs. She takes her medicine regularly for the first time in years.

I hadn’t talk to my mother in 8 months. I am terrible daughter. As soon as she was safe I went on with my life and didn’t even so much as ask about her. The truth is it’s to painful to think about.

Sometimes as selfish as it sounds I wish I could forget my entire childhood. My mother whom I love dearly is a constant reminder of that.

Her mental illness even with medication will never make her “normal”. She has set backs all the time. Today my brother went to see my mother and called me for her. She sounded drugged up but we had our first normal conversation in years.

When I asked her where she was she wasn’t sure. She had fallen and cut her chin open and she thinks she had 18 stitches. She thinks?

My heart broke just hearing that. How selfish am I? I haven’t asked about her. She’s been stuck alone in some facility I have never been to and I haven’t even checked on her.

Of course my brother is there for her but I am still her daughter. I should be there for her especially when she can’t be there for herself.

I once received a picture of my mother from when she was around 16 or 17 years old from one of her relatives. She was living with her older sister at the time, my aunt. It was the 1960’s and she was standing in one leg of a pair of men’s striped pajama pants. She was so tiny and had a mischievous look in her eye. She looked like she was quite a character.

I wish I could have known that version of her. Unfortunately her mental illness kicked in soon after I was born when she was 33 years of age. So I have no memories of her in a normal frame of mind.

I use try and imagine how she would have been had she been normal when I was growing up. Its hard for me but I imagine she would have been a lot like I am now.

Two weeks ago I turned 32 years old. I am not far off from my mothers age when her symptoms first kicked in. Talking to my mother today reminded me that she is still here and that I still have the chance to become the daughter I would wish I had, if I was in her situation. It’s not to late to be the daughter I should. It’s never to late to stop the regrets before they start.

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For my mother, who despite all the terrible traumas she has faced in an unforgiving world never gave up on her children